Meet our Mother of the Month, Mandi Tooker and her son Eric and his twin sister Paige. Here is The Tooker Story.
August 2014 was supposed to be a routine well check up for month old Paige and Eric. That appointment turned into a devastating blow, “Eric tested positive for Cystic Fibrosis on his newborn screen” the pediatrician said as he sat on the chair, trying not to show how upset he was for just laying such heavy news on us, a family he has known for 30 years. For over a year we went to many appointments with still no real true answer if he did have CF, but needed enzymes to even eat any food which is a big part of Cystic Fibrosis.(CF)
April 2017 we venture to Boston Children’s hospital (after our local specialists just could not help him) for a GI appointment. This doctor not only figured out what was wrong with Eric’s GI issues but also that he did in fact have CF and needed to be seen by pulmonary ASAP. August 2017, almost 3 years to the day the new pulmonologist says “Eric does have Cystic Fibrosis and we will be treating him with vitamins and increase enzymes to help him. Also we really want him to eat bacon!”
Eric has overcome many obstacles with his GI issues and his CF in general, once we got the right doctors and right medications he was able to exceed expectations and thrive for the first time in 3.5 years!
Eric is not only a boy with CF, he is also a boy who loves horses, his life revolves around them, and when he can spend some time at “his horse barn” with his best equestrian friend, Oakie, and muck stalls. He loves his family immensely, his toys, and of course movies and tv!
He is loved to infinity and beyond by so many!
18 year old Madison Ivey from Rockwall, Texas knew she had it in her heart to reach out to a family living in Butte, MT who has a 14 year old daughter who needs a lung evaluation for a transplant due to the affects of Cystic Fibrosis.
She organized a tennis tournament to raise funding to help The Cody Dieruf Benefit Foundation in assisting Bridget with her expenses in Houston Texas at Children’s Hospital.
Madison Ivey Blog: ” My heart is completely full and I am thankful to each and every person that came to the games. I have so much gratitude in my heart for The Cody Dieruf Benefit Foundation. You all came together and became a part of something to help another person living with Cystic Fibrosis. You never gave up hope, even after the loss of Cody. I am in awe of the love that was shared today at our event. It was the most beautiful day and Cody was with me in spirit the entire time. Thank you from the bottom of my heart in supporting a cause that means so much to me. We love and support you, Bridget, all of the love from Texas”
In Rockwall, Texas, Madison raised over $1,000.00 in support of our Saving Bridget Campaign. CDBF thanks Madison Ivey and all of her volunteers that came forward to help make this tennis tournament a big success. You also raised a lot of awareness of cystic fibrosis which is so important in our work
Sierra has Cystic Fibrosis. She is 12 years old and is on day 7 of her hospitalization due to a drop in lung functions. Sierra lives in Boise, Id. To make good use of her time, Sierra decided to make bracelets. The hospital staff started to purchase them. Sierra learned of our “Saving Bridget” campaign. 14 year old Bridget Mallo from Butte, MT is going to Houston Children’s Hospital for an initial evaluation for a lung transplant on January 6, 2019 and returning on January 12, 2019. Sierra has decided to sell her bracelets to help Bridget. All funds raised through the purchase of her bracelets will be used for Bridget. They come in all shapes and sizes, adult/child, and you choose your color. They are $5.00 plus $1.00 for shipping.
Place your order and help Bridget. Click the donate button on our web page and be sure to type in message, Sierra’s bracelets. Your size, and your color.
Sierra is an amazing young gal who wants to be a part of doing something good. She says, ” We need to help each other, as a teen we don’t get the Normal Life”.
If you don’t want a necklace, you can still donate to our “Saving Bridget” campaign.
From Idaho to Montana, Sierra says, “you are not alone, Bridget.”
George and I know to well what it was like when we had to have a lung transplant evaluation for our daughter, Cody. The transplant wait list was to long and Cystic Fibrosis took her life.
14 year old Bridget has a chance.
The transplant decision is a complicated one and involves input from a lot of people. Not always after an initial evaluation, are you put on the list, and if you are, you wait, wait for a donor.
The evaluation process is carefully coordinated to meet the specific needs of Bridget’s health history. Bridget will meet with a team of doctors and auxiliary staff.
Bridget leaves on January, 6, 2019 for her initial evaluation. The Cody Dieruf Benefit Foundation asks that you gift a donation to help Bridget in her travels. We have set up an emergency fund so that we are prepared as we never want to deny anyone a chance at life.
You may mail in a donation to P O Box 6044 Bozeman, MT 59771 or donate online at www.breathinisbelievin.org
My name is Madison Ivey, I am eighteen years old and from Dallas, Texas. I’m the niece of Ginny and George Dieruf, the creators of the Cody Dieruf Benefit Foundation, and it’’s been a passion of mine to be active with Team Cody, an organization I am proud to be apart of.
My entire life I’ve had a connection to Cody’s spirit, in a beautiful way. She sends me love letters from heaven, and I am continually grateful for the connection we have. And because of that, I want to help promote the foundation and spread love and light to families living with cystic fibrosis. It’s all for Cody and my sweet Ginny and Georgie, the people who inspire me the most in this world.
As you know, there is a special fundraiser going on for a young girl named Bridget. She needs your help. Click the donate button and lets raise some funding for Bridget. Bridget will be going to Houston Childrens Hospital for a double lung transplant evaluation. Lets get her there.
Bridget has cystic fibrosis. A progressive and genetic disease that causes persistent lung infections and limits the ability to breathe over time. Bridget is 14 years old. She is very sick. Her lungs functions are in the 40 percentile range, and often drops to the 30 percentile.
What does this mean? Its time for a double lung transplant evaluation! When the call came in from Houston Texas Childrens Hospital to this Butte, MT family a new beginning was to start.. The time has come for Bridget to undergo an evaluation. She must prepare herself for this new journey in her life. She must prepare herself mentally and physically. The wait for new lungs could be a long time, and in the meatime, preparations of the unknown enter into her life.
Travel to Texas Childrens Hospital will take its toll financially for this family. We can not let this family down. They need our help to get them to Texas and the ongoing support that is needed.
We need you! We ask that you donate to Bridgets flight of hope, to let her know that you care, that she is not alone in this walk of cystic fibrosis. CDBF strives to assists our families to help reduce the financial burden of this disease.
Please help us help Bridget. We ask that you donate to Saving Bridget Campaign. You can donate on line at www.breathinisbelievin.org or send a check to The Cody Dieruf Benefit Foundation P O Box 6044 Bozeman, MT 59771
PS: Please Help Us Help Bridget