Introducing beautiful Robin Modlin, MA
I am a mother of a Cystic Fibrosis child. My daughter, Anna is 37 and had a double lung transplant 8 years ago. My life changed when she received this miracle. Having been actively involved with the Cystic Fibrosis Research Inc,(CFRI) community for so many years I wanted to give back by designing a CF mother’s retreat called Embrace. I am honored to also be included in The Cody Dieruf Benefit Foundation Mothers Retreat held in Montana, We Walk Together. It is my passion to see CF moms come together in community and learn to care for themselves.
I am also a mosaic artist and a SoulCollage® facilitator. I believe we can create beauty and art out of our most difficult times. With an inward eye and creative bent I enjoy sharing collage and other participatory projects with others for personal healing.
Life has been very generous to me. I also have a beautiful daughter, Sara who is now a physician and a wonderful husband, Doug. I am so grateful and I know that CF has shaped me and my entire family by teaching us so many valuable lessons of love and compassion.
Thank you, Robin for being a part of our We Walk Together Mothers Retreat.
Hey all, if you have not already experienced the fine foods by Chefs Table Food Truck & Catering, it is time. Executive Chef Ryan Cotterell and Manager/Event Coordinator Ashley Cotterell are the husband and wife team who produce the 5 star quality food and service the valley is raving about. They are a restaurant on wheels, and yes they cater events, and are well known throughout the nation for its top quality food. Chefs Table Food Truck & Catering are strong supporters of our Cody Dieruf Benefit Foundation and they believe in our cause as we continue to help those with Cystic Fibrosis. You make a difference.
To date, Bridget is 14 years old. When she was 6 months old, she was rushed to the ER. Her parents were petrified of their daughters health. Bridget wasn’t breathing upon arrival. They said she had a collapsed lung and pneumonia. They said, “take her home and hold her, give her tylenol and check back with her doctor the next day”.
So her parents took Bridget home. The next morning she was back in the hospital, unresponsive. St. James Hospital life-flighted her to Missoula MT. They said she needed surgery. When they rushed her to surgery, they noticed a lot of her large intestines were dead. They removed a portion of her intestines, and her gallbladder. Surgery complete. Is the worst over?
No, Bridget kept feeling ill, and they didn’t know why. Missoula hospital then life-flighted her to Childrens Hospital in Portland Oregon in hopes that they could figure out why her little body kept shutting down. Portland decided to put her on the ECMO machine. A treatment that uses a pump to circulate blood through an artificial lung back into the bloodstream of a very ill baby.
Still no defining diagnosis. The surgeons went through a vein on her right side of her neck which helps supply blood to her brain.
By the time of her diagnosis the surgeons found that her vein was no good and they had to cauterize it to close it up. Bridget was diagnosed with Cystic Fibrosis.
In 14 years Bridget has had 4 major surgeries. Bridget is becoming accustomed to life-flights and ambulances. She spends most of her school year, holidays and summers being hospitalized. Her life consists of doctor appointments, breathing treatments, medications and hospitalizations. 2018 has proven to be a rough year.
Bridget has her whole life in the palm of her hands just waiting, waiting to be given a chance, to “just breathe” Her family could use some words of strength right now.
Interactive Six-Week Online Yoga Class Begins Saturday, September 15, 2018, 11:00 am – 12:30 pm PST
CFRI’s “Yoga for CF Health” is an online interactive class taught by Martha Modawell, Certified Yoga Instructor and mother of two children with CF.
The class is free to individuals with CF, as well as parents, spouses, partners and siblings of those with CF.
Get your mat and join your CF community members each week in a fun, healthy, and relaxing yoga session.
I met this momma at our 2017 Mothers Retreat “We Walk Together” Martha touched the hearts of all the moms that attended and she touched my soul. Be sure and attend this Six-Week Online Yoga Class.
The mothers’ retreat for moms of cystic fibrosis children is one way in which The Cody Dieruf Benefit Foundation
supports CF families. Our foundation, created in memory of our daughter, Cody,
honors Cody’s final request which was for us to help other families with Cystic Fibrosis.
We are on the countdown to September 28th, 2018. Our retreat will be held at 320 Ranch in beautiful Big Sky, Montana.
The Cody Dieruf Benefit Foundation is a non-profit organization that was established in honor of Cody Dieruf who passed away from Cystic Fibrosis on April 28, 2005 at the young age of 23.
Since then, the foundation has carried on the legacy of Cody’s life and helps other families living with this illness. The foundation has now grown into seven counties making sure that those with CF can obtain specialty care. It provides scholarships for recreation and fitness throughout all of Montana, and holds an annual Mothers Retreat for mothers of cystic fibrosis children.
The foundation strives to offer emotional and finacial support as well has hope to families effected by cystic fibrosis
Everyday, I am so touched by the kindness of others. Welcome to The Cody Team, Beartooth IGA Market.
Beartooth IGA has chosen The Cody DIeruf Benefit Foundation for their Round UP Campaign in July. At all registrars with a picture of one of their own living in Red Lodge with this disease, they ask the customers if they would like to “Round Up” to the nearest dollar and support The Cody Foundation. This funding helps support those with Cytsic Fibrosis.
This lil gal loves her sister, Maylie, who has cystic fibrosis, so much. They have a special closeness as if they were twins even though they are two years apart. This comes from the love and support of a beautiful family, and Red Lodge opens up there hearts in so many ways.
Cystic fibrosis is a disease that affects not only the patient but the entire family, which needs to adapt to a new reality. Continually seeking knowledge and news about the disease can help patients and families stay updated and prepared for any unexpected event.
Beartooth IGA has made it there mission to help spread awareness of this disase called cystic fibrosis.
Thank you to the people of Red Lodge, MT.
Where else would you want to go to have a 3 day retreat of rest, rejuvenation, relaxation and peace in Montana!
Welcome to our attending Mothers of Cystic Fibrosis children to the 320 ranch on Sept 28, 2018 as we explore our inner selves.
The Cody Dieruf Benefit Foundation began our first annual mothers retreat, after Ginny was invited to speak at The Cystic FIbrosis Research Inc conference in 2016. With CFRI expertise and direction and the numoruos volunteer hours to prepare by Laura Mentch, Montana held its first mothers retreat in 2017.
Ginny, mother to Cody, saw the need for mothers, like herself, to find a time to bond with other mothers who are walking the sames shoes of an illness. An illness called cystic fibrosis. Thanks to our sponsors, and community support, no mother has to pay for this weekend retreat.
2019 brings a whole new venture to our CDBF retreats as we explore moving them into other states.
It is with pride that we spent the evening with Lou Raisler and his gal pal, Myra. Lou has donated numerous rifles to our 2018 auction and to top it off, he donated a fishing boat that was sold at a high value. Lou says, “All I have to do is look at Cody’s picture and her beautiful words about life. I want to help in anyway that I can, he says”.
Cystic Fibrosis is real, and our community knows it. George, myself and Levi and his family are so emcompassed by the kindness of others. Happy Birthday, Lou and thank you for being a part of Team Cody.