Meet our Mother of the Month for June – Meet Taralynn Horton and her family.
Tara says, At three months our oldest son was diagnosed with Cystic Fibrosis. A few years later that diagnosis was taken away and we took our luck and ran for the hills feeling blessed. 14 years later all that changed and not only was my son again diagnosed with CF, but my 3 other kids as well.
Our lives have now changed forever. Whether it be for better or for worse, we will wait as God’s plan unfolds. It has not been easy keeping up with appointments and treatment schedules, but my kids don’t let their new disease stop them from living their lives. In fact I would argue that because of the disease, my kids are making an extra effort to live their lives to the fullest.
My oldest has since started a YouTube channel for his music and plans to expand further on that. My youngest son now goes to Friday Night Magic almost every week and wins something new almost every time he goes. My girls spend their lives now doing ballet and ice skating and I know as their mother I may be bias but they are truly amazing at what they do! Our kids are Portland 17, Memphis 15, Phoenix 7 and Brooklyn 6.
If I could, I would take the disease away from them in a heartbeat, but seeing my kids now and how far they’ve come I would not trade their past because I know that they have a bright future ahead of them. I am not just a proud mama but the proudest mama. I love my kids and know that only good things are in store for them.
Meeting up with other mothers of children with CF in Montana at the “We Walk Together” mothers retreat is the highlight of my year. Being with other women, if only for a short time, that know-I mean truly know what you are going through is so incredibly healing and gives me the strength I need to be the best mom I can be.
The Cody Dieruf Benefit Foundations 3rd annual retreat is a beautiful 3 day retreat at the 320 ranch to be held in September of 2019.
Meet Elaina Pyke. Elaina is one of our special mothers who has attended our “We Walk Together” Mother’s Retreat. It is always so inspiring to read the stories of our mothers as time passes. This is not only Mothers Day month but also CF Awareness Month. Happy Mothers Day to all of our moms of CF children.
My name is Elaina, I’m a single parent of 3 incredible children Lillyan 15, Olivia 8 and Mario (aka Baby Mario) 4 years old. Mario has Cystic Fibrosis (CF).
Mario’s father and I found out we are CF carriers after prenatal screening during my pregnancy with Olivia. She does not have CF, but inherited a CF trait. Baby Mario was diagnosed prenatally at 26 weeks via amniocentesis results came back positive down to his genetic mutation Homozygous Delta F508 which affects the digestive and respiratory system. The diagnosis was later confirmed with both new born screens and sweat test.
Life with CF for us isn’t black and white, we have 2 crazy households that seem to function at their best. We’re living and learning our way of life with CF along the way. Hell yes our routines can be hectic, treatments don’t always occur at the same time of day, but hey, they get done.
Reminding ourselves to have grace is often forgotten but so important for us to move forward. I learned the importance of giving myself grace during the 2017 Montana We Walk Together Mothers retreat. I’ve also sparked a passion to become more involved with the CF community, but I wasn’t sure how and when…
Once 2019 came around, multiple opportunities arose and I decided to take advantage of them. I’m extremely excited to be a member of the Mary Bridge CF Parent Advisory Board and looking to joining the Mary Bridge Hospital Parent Advisory Council as well. I find fulfillment in advocacy and I’m looking forward to undertake these positions as a CF mother and representing our community the best way I can.
With all these opportunities evolving in my life I’m proud to say I’m still connected to the best group of women I ever met on our Montana Mothers Retreat FB group. It’s reassuring to know I’m not alone and we’re all traveling one hell of a journey with CF together.
My name is Martha I have 2 daughters with Cystic Fibrosis(CF) and a son who is a carrier. I have been married for 14 years to my hubby Colt who is a Nurse.
About me….wow a lot I can say, let’s start with my journey of the CF world.
I had my oldest very young and then my second soon after, they where Not diagnosed at birth, they where diagnosed after years of questions. Sierra was almost three years old and Maddie was 18 months. They where so small and looked okayish… When they were diagnosed Colt and I just felt like our world was crumbling at our feet. I became a addict, Colt withdrawn.
Finally we got it together and now we stand firm together but it took us coming together. I have since become a Yoga teacher, & yoga therapist. I bring the healing of Yoga to my family and then to the CF community.
I LOVE sharing my love of healing through Yoga at the Mother retreats, one in California and one in Montana.
I have been blessed with two daughters to teach me the importance of being present and knowing how love truly is the most healing power for the heart and soul.
I now teach yoga for CF mothers retreats, online for the CF community, & I do a Podcast for CF moms with Paige Dunn from Utah. I travel to CFRI conference in California to teach yoga to those attending. I love this CF community. We are tiny but so mighty, and to be part of it….it’s Magical! You truly see the darkest of times and because of it, we see the Brightest of light and love.
Sierra has Cystic Fibrosis. She is 12 years old and is on day 7 of her hospitalization due to a drop in lung functions. Sierra lives in Boise, Id. To make good use of her time, Sierra decided to make bracelets. The hospital staff started to purchase them. Sierra learned of our “Saving Bridget” campaign. 14 year old Bridget Mallo from Butte, MT is going to Houston Children’s Hospital for an initial evaluation for a lung transplant on January 6, 2019 and returning on January 12, 2019. Sierra has decided to sell her bracelets to help Bridget. All funds raised through the purchase of her bracelets will be used for Bridget. They come in all shapes and sizes, adult/child, and you choose your color. They are $5.00 plus $1.00 for shipping.
Place your order and help Bridget. Click the donate button on our web page and be sure to type in message, Sierra’s bracelets. Your size, and your color.
Sierra is an amazing young gal who wants to be a part of doing something good. She says, ” We need to help each other, as a teen we don’t get the Normal Life”.
If you don’t want a necklace, you can still donate to our “Saving Bridget” campaign.
From Idaho to Montana, Sierra says, “you are not alone, Bridget.”
George and I know to well what it was like when we had to have a lung transplant evaluation for our daughter, Cody. The transplant wait list was to long and Cystic Fibrosis took her life.
14 year old Bridget has a chance.
The transplant decision is a complicated one and involves input from a lot of people. Not always after an initial evaluation, are you put on the list, and if you are, you wait, wait for a donor.
The evaluation process is carefully coordinated to meet the specific needs of Bridget’s health history. Bridget will meet with a team of doctors and auxiliary staff.
Bridget leaves on January, 6, 2019 for her initial evaluation. The Cody Dieruf Benefit Foundation asks that you gift a donation to help Bridget in her travels. We have set up an emergency fund so that we are prepared as we never want to deny anyone a chance at life.
You may mail in a donation to P O Box 6044 Bozeman, MT 59771 or donate online at www.breathinisbelievin.org