Meet our Mother of the Month for June – Meet Taralynn Horton and her family.
Tara says, At three months our oldest son was diagnosed with Cystic Fibrosis. A few years later that diagnosis was taken away and we took our luck and ran for the hills feeling blessed. 14 years later all that changed and not only was my son again diagnosed with CF, but my 3 other kids as well.
Our lives have now changed forever. Whether it be for better or for worse, we will wait as God’s plan unfolds. It has not been easy keeping up with appointments and treatment schedules, but my kids don’t let their new disease stop them from living their lives. In fact I would argue that because of the disease, my kids are making an extra effort to live their lives to the fullest.
My oldest has since started a YouTube channel for his music and plans to expand further on that. My youngest son now goes to Friday Night Magic almost every week and wins something new almost every time he goes. My girls spend their lives now doing ballet and ice skating and I know as their mother I may be bias but they are truly amazing at what they do! Our kids are Portland 17, Memphis 15, Phoenix 7 and Brooklyn 6.
If I could, I would take the disease away from them in a heartbeat, but seeing my kids now and how far they’ve come I would not trade their past because I know that they have a bright future ahead of them. I am not just a proud mama but the proudest mama. I love my kids and know that only good things are in store for them.
Meeting up with other mothers of children with CF in Montana at the “We Walk Together” mothers retreat is the highlight of my year. Being with other women, if only for a short time, that know-I mean truly know what you are going through is so incredibly healing and gives me the strength I need to be the best mom I can be.
The Cody Dieruf Benefit Foundations 3rd annual retreat is a beautiful 3 day retreat at the 320 ranch to be held in September of 2019.
Meet Elaina Pyke. Elaina is one of our special mothers who has attended our “We Walk Together” Mother’s Retreat. It is always so inspiring to read the stories of our mothers as time passes. This is not only Mothers Day month but also CF Awareness Month. Happy Mothers Day to all of our moms of CF children.
My name is Elaina, I’m a single parent of 3 incredible children Lillyan 15, Olivia 8 and Mario (aka Baby Mario) 4 years old. Mario has Cystic Fibrosis (CF).
Mario’s father and I found out we are CF carriers after prenatal screening during my pregnancy with Olivia. She does not have CF, but inherited a CF trait. Baby Mario was diagnosed prenatally at 26 weeks via amniocentesis results came back positive down to his genetic mutation Homozygous Delta F508 which affects the digestive and respiratory system. The diagnosis was later confirmed with both new born screens and sweat test.
Life with CF for us isn’t black and white, we have 2 crazy households that seem to function at their best. We’re living and learning our way of life with CF along the way. Hell yes our routines can be hectic, treatments don’t always occur at the same time of day, but hey, they get done.
Reminding ourselves to have grace is often forgotten but so important for us to move forward. I learned the importance of giving myself grace during the 2017 Montana We Walk Together Mothers retreat. I’ve also sparked a passion to become more involved with the CF community, but I wasn’t sure how and when…
Once 2019 came around, multiple opportunities arose and I decided to take advantage of them. I’m extremely excited to be a member of the Mary Bridge CF Parent Advisory Board and looking to joining the Mary Bridge Hospital Parent Advisory Council as well. I find fulfillment in advocacy and I’m looking forward to undertake these positions as a CF mother and representing our community the best way I can.
With all these opportunities evolving in my life I’m proud to say I’m still connected to the best group of women I ever met on our Montana Mothers Retreat FB group. It’s reassuring to know I’m not alone and we’re all traveling one hell of a journey with CF together.
My name is Madison Ivey, I am eighteen years old and from Dallas, Texas. I’m the niece of Ginny and George Dieruf, the creators of the Cody Dieruf Benefit Foundation, and it’’s been a passion of mine to be active with Team Cody, an organization I am proud to be apart of.
My entire life I’ve had a connection to Cody’s spirit, in a beautiful way. She sends me love letters from heaven, and I am continually grateful for the connection we have. And because of that, I want to help promote the foundation and spread love and light to families living with cystic fibrosis. It’s all for Cody and my sweet Ginny and Georgie, the people who inspire me the most in this world.
As you know, there is a special fundraiser going on for a young girl named Bridget. She needs your help. Click the donate button and lets raise some funding for Bridget. Bridget will be going to Houston Childrens Hospital for a double lung transplant evaluation. Lets get her there.
The Cody Dieruf Benefit Foundation receives $2,000.00 to help mothers of Cystic Fibrosis children attend We Walk Together Mothers Retreat. It takes a village to make a retreat happen and we were lucky enough to have Genentech join our team for our 2nd Annual Mothers Retreat. Cystic Fibrosis affects many families and CDBF likes to reach out to mothers to join in solace and do some soul searching as we walk with cystic fibrosis together. We are grateful for this grant. With the help of Genentech, we had a successful and memorable weekend.
A $10,000 grant was awarded to The Cody Dieruf Benefit Foundation for its program We Walk Together Mothers Retreat. A retreat for mothers of Cystic Fibrosis children. We are touched and honored by this CFF Impact grant award. CDBF feels it is an important aspect of their foundation. A way that we can continue to honor Cody Dieruf and all the mothers of cystic fibrosis children. Our 2nd annual event was truly inspiring, emotional and brought a sense of freedom as the mothers poured out their hearts regarding life with this disease of cystic fibrosis. CFF Impact Award was our title sponsor for this event. We are grateful to know that CFF believes in our cause, and we will continue to strive to make this event an available each year to mothers.
The Cody Dieruf Benefit Foundation offers a three-day We Walk Together Mother’s Retreat for the mothers of children with CF, providing them with valuable education, self-care, and mutual support. The retreat aims to improve the wellbeing of mothers and in turn, improve the health and happiness of their entire families.
Martha Modawell RYT 200
Martha is the mother of two daughters with Cystic Fibrosis. She studied Yoga and Reiki at Yoga For Healthy Living LLC in Brighton MI, where she received her RYT 200 Sivananda Style Yoga. Martha brings her authenticity and love for Yoga to each class. Her classes are humorous and yet grounding; she helps her students to feel empowered and to develop a true connection with themselves. Having found personal healing in yoga, Martha loves to teach from the heart and serve those around her with passion and love. At her former studio in Troy, MI., called Yoga For Healing, Martha worked with those overcoming addictions, PTSD, anxiety, depression, and trauma. Martha now lives with her family in Boise ID. She uses her innate ability to connect with people to create a comfortable relaxing and fun Yoga practice that empowers and enriches her students.
The Cody Dieruf Benefit Foundation welcomes Martha to our 2018 annual Mothers Retreat.
Introducing beautiful Robin Modlin, MA
I am a mother of a Cystic Fibrosis child. My daughter, Anna is 37 and had a double lung transplant 8 years ago. My life changed when she received this miracle. Having been actively involved with the Cystic Fibrosis Research Inc,(CFRI) community for so many years I wanted to give back by designing a CF mother’s retreat called Embrace. I am honored to also be included in The Cody Dieruf Benefit Foundation Mothers Retreat held in Montana, We Walk Together. It is my passion to see CF moms come together in community and learn to care for themselves.
I am also a mosaic artist and a SoulCollage® facilitator. I believe we can create beauty and art out of our most difficult times. With an inward eye and creative bent I enjoy sharing collage and other participatory projects with others for personal healing.
Life has been very generous to me. I also have a beautiful daughter, Sara who is now a physician and a wonderful husband, Doug. I am so grateful and I know that CF has shaped me and my entire family by teaching us so many valuable lessons of love and compassion.
Thank you, Robin for being a part of our We Walk Together Mothers Retreat.
We are excited in our planning stages of 2018 Mothers Retreat to be held in beautiful Big Sky Montana at the 320 Ranch. Register online at http://www.breathinisbelievin.org.
Prepare for an enlightening weekend as all of us mothers Walk Together in our journey of Cystic Fibrosis.
The CDBF 2018 Mother’s Retreat will provide participants with a restful weekend, free from the daily
responsibilities of caring for a child with CF. Participating mothers will find support with one another, learn
new approaches to caring for themselves and return home renewed.