Ladies Night at Schnee’s Downtown Bozeman

YOU are invited to Schnee’s downtown on May 2, 2019 from 6:pm-8p.m for Ladies Night. Watch for great raffles and prizes. This event is presented by Schnee’s and Keen. The night before GIVE BIG.
 
Proceeds to benefit Friends of Hyalite & The Cody Dieruf Benefit Foundation. Two great causes joining forces in partnership with Schnee’s. Mark your calendars.

Saving Bridget

 

It is with a heavy heart as I give you an update on Bridget. Bridget is being released from the Billings Deaconess to spend her last days in her home away from the hospital. Cystic Fibrosis is robbing her of her life.

This beautiful angel on earth has one request in her last days, and that is to spend time with her family and friends. She wants to be comfortable and away from pain that is engulfing her body. She says she does not want to see her family under stress due to her illness.

Instead of requesting a Make A Wish, due to her unselfish ask she is asking for financial freedom for her mom, Elizabeth. The Cody Dieruf Benefit Foundation will step in and try to make this as easy as possible. Elizabeth wants live butterflies to fly into the sky and One big Rose with 65 rainbow roses so that 65 people can lay a rose near Bridget at her funeral.

It is never easy to lose someone you are close to, especially your child’s life. CDBF will be working closely with Butte, MT as we bring the community together to supply food, help pay for bills, and give Bridget her wish of comfort. Please message me if you would like to help give Bridget and her family the love and support that they need right now. We hold you close Bridget.

Make a donation @ www.breathinisbelievin.org and leave a memo Saving Bridget.

We are so proud of this partnership

Recognizing our mutual desire to enhance the wellbeing of our community, YCCF, Breathin’ is Believin’, and the BZN International Film Festival are excited to be partnering up!

Passes are now on sale to BZN 2019, June 6-9 in Bozeman. USE THE URL BELOW TO BUY YOUR PASSES TO BZN 2019, and 25% of your pass purchase will be donated directly to Breathin’ Is Believin’! (Effective until April 15 at Ruckustix.com/events/bzn-breathinisbelievin)

Over 60 films will screen at the 2nd Annual BZN International Film Festival, in venues throughout downtown Bozeman, Montana, complemented by a rich slate of Q&A sessions, panel discussions, community-wide events and parties.

In an effort to change current statistics and elevate women’s voices, BZN spotlights female filmmakers and films that encourage greater stewardship of our beloved Mother Earth.

Meet Martha Modawell – Mother of the Month for April

 

 

My name is Martha I have 2 daughters with Cystic Fibrosis(CF) and a son who is a carrier. I have been married for 14 years to my hubby Colt who is a Nurse.

About me….wow a lot I can say, let’s start with my journey of the CF world.

I had my oldest very young and then my second soon after, they where Not diagnosed at birth, they where diagnosed after years of questions. Sierra was almost three years old and Maddie was 18 months. They where so small and looked okayish… When they were diagnosed  Colt and I just felt like our world was crumbling at our feet. I became a addict, Colt withdrawn.

Finally we got it together and now we stand firm together but it took us coming together.  I have since become a Yoga teacher, & yoga therapist. I bring the healing of Yoga to my family and then to the CF community.

I LOVE sharing my love of healing through Yoga at the Mother retreats, one in California and one in Montana.

I have been blessed with  two daughters to teach me the importance of being present and knowing how love truly is the most healing power for the heart and soul.

I now teach yoga for CF mothers retreats, online for the CF community, & I do a Podcast for CF moms with Paige Dunn from Utah.   I travel to CFRI conference in California to teach yoga to those attending.   I love this CF community.  We are tiny but so mighty, and to be part of it….it’s Magical!  You truly see the darkest of times and because of it, we see the Brightest of light and love.

 

 

Five Feet Apart

If you don’t understand Cystic Fibrosis(CF), this movie is an example of the emotional and physical pain that a person goes through living with CF. As Cody would say, “if I could only walk up a flight of stairs without losing breath”, becomes very real in this film. I encourage you all to go and see this movie, it will hit hard to some, it will draw awareness of CF to many and it will help those of you who do not know CF to get a better understanding of this disease. To us, it will be a reminder of our life with Cody and her life with cystic fibrosis.  Thanks to Regal Cinemas Gallatin, we were able to set up our stand up banners in front of movie theatre.

Vertex Pharmaceuticals Stands Behind The Cody Dieruf Benefit Foundation

The Cody Dieruf Benefit Foundation is excited to announce that VERTEX PHARMACEUTICALS INCORPORATED has granted us funding to continue with granting scholarships for our Recreation and Fitness Program. To the families in Montana living with Cystic Fibrosis and would like to apply go to www.breathinisbelievin.org and fill out an application.

It is a proven fact that exercise and fitness can help maintain lung function.

Thank you Vertex for believing in us. To learn more about Vertex go to https://www.vrtx.com

 

Mother of the Month for February 2019

 

Finding out your first born has a disease is so many things…
Hard to accept
Lifechanging
Stressful
Sad
and on and on.

 

At 23 I was like most first time expectant mothers. Naïve to the possibility that everything wouldn’t just be perfect. When we received confirmation that she had this thing called Cystic Fibrosis(CF) I was actually relieved. I have always been the person who would rather know the worst so I can work the problem.

Having it be your child is another new level and will teach you who you are and just how strong you can be.

This journey has been incredible. Incredibly hard. Incredibly beautiful.

For most of our daughters life, our biggest struggle was just keeping weight on her. Which ironically is hard
when the rest of the world is trying to loose weight. I have always told her to look for the positives. While we have always fought to keep things as normal as possible, these kids are anything but normal.

Breanna has always been my creative artist, gypsy, bohemian, tyrant, comedian and stubborn girl.

Now she is 18 and married. How did this happen? Where did the time go? When she was diagnosed her expected life was only 18 years.

We are so grateful for every day and that we survived the teenage craziness. Now we get to watch the next chapter unfold. Blessed each day.

2019 NCAA March Madness Calcutta

We all want a cure for Cystic Fibrosis(CF) and we all want to see our families living with CF given quality of life.  The NCAA March Madness Calcutta is striving to make this happen.

 

Please join us on March 20th, 2019 at Butte Country Club in good ole Butte, MT.

The Cody Dieruf Benefit Foundation is proud to be a part of the 2019 NCAA March Madness Calcutta. This is the 6th Annual Cystic Fibrosis Benefit and our first time being involved.

Meet Former Butte High and University of Montana star Colt Anderson  as the special guest of the evening . The public is welcome to attend.    Registration will begin at 5:30 p.m and the auction will be held at 7:30 p.m. at the Country Club.

Appetizers will be served. The public is welcome, but you must be 18 or older to attend. The Calcutta auction is licensed by the State of Montana.

90% of the total bids will be paid back to participating bidders, 10% goes to Cystic Fibrosis Foundation and a portion of the silent auction items go to The Cody Dieruf Benefit Foundation.

Come to Butte, MT and enjoy this fun evening with friends. 2019 FINAL poster

 

Meet Our Mother of The Month

Meet our Mother of the Month, Mandi Tooker and her son Eric and his twin sister Paige. Here is The Tooker Story.

August 2014 was supposed to be a routine well check up for month old Paige and Eric. That appointment turned into a devastating blow, “Eric tested positive for Cystic Fibrosis on his newborn screen” the pediatrician said as he sat on the chair, trying not to show how upset he was for just laying such heavy news on us, a family he has known for 30 years. For over a year we went to many appointments with still no real true answer if he did have CF, but needed enzymes to even eat any food which is a big part of Cystic Fibrosis.(CF)

April 2017 we venture to Boston Children’s hospital (after our local specialists just could not help him) for a GI appointment. This doctor not only figured out what was wrong with Eric’s GI issues but also that he did in fact have CF and needed to be seen by pulmonary ASAP. August 2017, almost 3 years to the day the new pulmonologist says “Eric does have Cystic Fibrosis and we will be treating him with vitamins and increase enzymes to help him. Also we really want him to eat bacon!”

Eric has overcome many obstacles with his GI issues and his CF in general, once we got the right doctors and right medications he was able to exceed expectations and thrive for the first time in 3.5 years!
Eric is not only a boy with CF, he is also a boy who loves horses, his life revolves around them, and when he can spend some time at “his horse barn” with his best equestrian friend, Oakie, and muck stalls. He loves his family immensely, his toys, and of course movies and tv!

He is loved to infinity and beyond by so many!

www.breathinisbelievin.org

Chronically Salty

 

My name is Tyler Cowley and I have Cystic Fibrosis.(CF) I started an Instagram page to help people feel like Cystic Fibrosis is manageable, even through tough times. If you would like to see the page, it is @mycflife. 

9 months ago, Myself and a team of people started a new business called Chronically Salty chronicallysaltyclothing.com in hopes that we can bring hope to those with Cystic Fibrosis and create a community of people who know that they are supported in this lonely world of Cystic Fibrosis.  We at Chronically Salty want to inspire people to get out and get active to obtain good lung functions.  The entire idea that inspired Chronically Salty was linked directly with Cystic Fibrosis. When people with CF sweat, it is extra salty, making them “chronically salty.”

Our mission is to help spread awareness about Cystic Fibrosis through Chronically Salty, while also helping by sending funds to the Cystic Fibrosis Foundation or helping individuals who may need support to move forward toward better health.

Right now we know of a 14 year old gal in Butte, Montana who needs to be evaluated for double lung transplant due to her Cystic Fibrosis. Since I have CF, I know what it is like to walk this journey and I want to help create awareness of CF and inspire others to help in this process.  At Chronically Salty, we wanted to help support Bridget and her family an any way possible because everyone deserves a chance to live a happy and healthy life.

You to can help, go to chronicallysaltyclothing.com   
and purchase an item.  Chronically Salty Clothing will donate a part of the proceeds to “Saving Bridget Campaign” affiliated with The Cody Dieruf Benefit Foundation.
Chronically Salty Team
Tyler Cowley