We are so proud of 9 year old Dallas. She loves to attend Camp Equinox in the summer. Dallas says that singing, dancing, art, and acting are her favorite things to do. Camp Equinox of Bozeman gives Dallas new friends, and while she is learning how to respect others, she learns how to cooperate with others with confidence.
Dallas says, “that dancing helps clear out the gunk in my lungs, singing helps me open my airways and acting is good for the brain”.
Well, Dallas, we believe you are right and CDBF is most happy to grant to you, Camp Equinox this summer.
A big salute to Dallas.
Meet our Mother of the Month for June – Meet Taralynn Horton and her family.
Tara says, At three months our oldest son was diagnosed with Cystic Fibrosis. A few years later that diagnosis was taken away and we took our luck and ran for the hills feeling blessed. 14 years later all that changed and not only was my son again diagnosed with CF, but my 3 other kids as well.
Our lives have now changed forever. Whether it be for better or for worse, we will wait as God’s plan unfolds. It has not been easy keeping up with appointments and treatment schedules, but my kids don’t let their new disease stop them from living their lives. In fact I would argue that because of the disease, my kids are making an extra effort to live their lives to the fullest.
My oldest has since started a YouTube channel for his music and plans to expand further on that. My youngest son now goes to Friday Night Magic almost every week and wins something new almost every time he goes. My girls spend their lives now doing ballet and ice skating and I know as their mother I may be bias but they are truly amazing at what they do! Our kids are Portland 17, Memphis 15, Phoenix 7 and Brooklyn 6.
If I could, I would take the disease away from them in a heartbeat, but seeing my kids now and how far they’ve come I would not trade their past because I know that they have a bright future ahead of them. I am not just a proud mama but the proudest mama. I love my kids and know that only good things are in store for them.
Meeting up with other mothers of children with CF in Montana at the “We Walk Together” mothers retreat is the highlight of my year. Being with other women, if only for a short time, that know-I mean truly know what you are going through is so incredibly healing and gives me the strength I need to be the best mom I can be.
The Cody Dieruf Benefit Foundations 3rd annual retreat is a beautiful 3 day retreat at the 320 ranch to be held in September of 2019.
Because of our Empowerment Sponsor Chef’s Table Truck and Catering, we are bringing to you A Night of Hope. This is a private event, and tickets are selling fast. We expect a full house. We will bring the house down. Listen to us on XL Country on May 8, at 8:30 and hear all about it.
Monies raised through this event will go directly to helping our Cystic Fibrosis families living within 7 counties, and providing scholarships for Recreation and Fitness, and our Mothers Retreat for moms of cystic fibrosis children.
A Night of Hope is in memory of Cody Dieruf, Eli Tripp and Bridget Mallo and all those with Cystic Fibrosis.
We care, because breathin
It is with a heavy heart as I give you an update on Bridget. Bridget is being released from the Billings Deaconess to spend her last days in her home away from the hospital. Cystic Fibrosis is robbing her of her life.
This beautiful angel on earth has one request in her last days, and that is to spend time with her family and friends. She wants to be comfortable and away from pain that is engulfing her body. She says she does not want to see her family under stress due to her illness.
Instead of requesting a Make A Wish, due to her unselfish ask she is asking for financial freedom for her mom, Elizabeth. The Cody Dieruf Benefit Foundation will step in and try to make this as easy as possible. Elizabeth wants live butterflies to fly into the sky and One big Rose with 65 rainbow roses so that 65 people can lay a rose near Bridget at her funeral.
It is never easy to lose someone you are close to, especially your child’s life. CDBF will be working closely with Butte, MT as we bring the community together to supply food, help pay for bills, and give Bridget her wish of comfort. Please message me if you would like to help give Bridget and her family the love and support that they need right now. We hold you close Bridget.
Make a donation @ www.breathinisbelievin.org and leave a memo Saving Bridget.
My name is Martha I have 2 daughters with Cystic Fibrosis(CF) and a son who is a carrier. I have been married for 14 years to my hubby Colt who is a Nurse.
About me….wow a lot I can say, let’s start with my journey of the CF world.
I had my oldest very young and then my second soon after, they where Not diagnosed at birth, they where diagnosed after years of questions. Sierra was almost three years old and Maddie was 18 months. They where so small and looked okayish… When they were diagnosed Colt and I just felt like our world was crumbling at our feet. I became a addict, Colt withdrawn.
Finally we got it together and now we stand firm together but it took us coming together. I have since become a Yoga teacher, & yoga therapist. I bring the healing of Yoga to my family and then to the CF community.
I LOVE sharing my love of healing through Yoga at the Mother retreats, one in California and one in Montana.
I have been blessed with two daughters to teach me the importance of being present and knowing how love truly is the most healing power for the heart and soul.
I now teach yoga for CF mothers retreats, online for the CF community, & I do a Podcast for CF moms with Paige Dunn from Utah. I travel to CFRI conference in California to teach yoga to those attending. I love this CF community. We are tiny but so mighty, and to be part of it….it’s Magical! You truly see the darkest of times and because of it, we see the Brightest of light and love.
If you don’t understand Cystic Fibrosis(CF), this movie is an example of the emotional and physical pain that a person goes through living with CF. As Cody would say, “if I could only walk up a flight of stairs without losing breath”, becomes very real in this film. I encourage you all to go and see this movie, it will hit hard to some, it will draw awareness of CF to many and it will help those of you who do not know CF to get a better understanding of this disease. To us, it will be a reminder of our life with Cody and her life with cystic fibrosis. Thanks to Regal Cinemas Gallatin, we were able to set up our stand up banners in front of movie theatre.
The Cody Dieruf Benefit Foundation is excited to announce that VERTEX PHARMACEUTICALS INCORPORATED has granted us funding to continue with granting scholarships for our Recreation and Fitness Program. To the families in Montana living with Cystic Fibrosis and would like to apply go to www.breathinisbelievin.org and fill out an application.
It is a proven fact that exercise and fitness can help maintain lung function.
Thank you Vertex for believing in us. To learn more about Vertex go to https://www.vrtx.com
Finding out your first born has a disease is so many things…
Hard to accept
and on and on.
At 23 I was like most first time expectant mothers. Naïve to the possibility that everything wouldn’t just be perfect. When we received confirmation that she had this thing called Cystic Fibrosis(CF) I was actually relieved. I have always been the person who would rather know the worst so I can work the problem.
Having it be your child is another new level and will teach you who you are and just how strong you can be.
This journey has been incredible. Incredibly hard. Incredibly beautiful.
For most of our daughters life, our biggest struggle was just keeping weight on her. Which ironically is hard
when the rest of the world is trying to loose weight. I have always told her to look for the positives. While we have always fought to keep things as normal as possible, these kids are anything but normal.
Breanna has always been my creative artist, gypsy, bohemian, tyrant, comedian and stubborn girl.
Now she is 18 and married. How did this happen? Where did the time go? When she was diagnosed her expected life was only 18 years.
We are so grateful for every day and that we survived the teenage craziness. Now we get to watch the next chapter unfold. Blessed each day.