Vertex Pharmaceuticals believes in our Mothers Retreat. They granted us $5,000.00 to help bring mothers of cystic fibrosis children to our retreat held at the 320 ranch in Big Sky Montana. Vertex believes in the CF community and wants to help those that live with cystic fibrosis. From Montana to Vertex headquartered in Boston, CDBF thanks you for believing in us.
A $10,000 grant was awarded to The Cody Dieruf Benefit Foundation for its program We Walk Together Mothers Retreat. A retreat for mothers of Cystic Fibrosis children. We are touched and honored by this CFF Impact grant award. CDBF feels it is an important aspect of their foundation. A way that we can continue to honor Cody Dieruf and all the mothers of cystic fibrosis children. Our 2nd annual event was truly inspiring, emotional and brought a sense of freedom as the mothers poured out their hearts regarding life with this disease of cystic fibrosis. CFF Impact Award was our title sponsor for this event. We are grateful to know that CFF believes in our cause, and we will continue to strive to make this event an available each year to mothers.
The Cody Dieruf Benefit Foundation offers a three-day We Walk Together Mother’s Retreat for the mothers of children with CF, providing them with valuable education, self-care, and mutual support. The retreat aims to improve the wellbeing of mothers and in turn, improve the health and happiness of their entire families.
Introducing beautiful Robin Modlin, MA
I am a mother of a Cystic Fibrosis child. My daughter, Anna is 37 and had a double lung transplant 8 years ago. My life changed when she received this miracle. Having been actively involved with the Cystic Fibrosis Research Inc,(CFRI) community for so many years I wanted to give back by designing a CF mother’s retreat called Embrace. I am honored to also be included in The Cody Dieruf Benefit Foundation Mothers Retreat held in Montana, We Walk Together. It is my passion to see CF moms come together in community and learn to care for themselves.
I am also a mosaic artist and a SoulCollage® facilitator. I believe we can create beauty and art out of our most difficult times. With an inward eye and creative bent I enjoy sharing collage and other participatory projects with others for personal healing.
Life has been very generous to me. I also have a beautiful daughter, Sara who is now a physician and a wonderful husband, Doug. I am so grateful and I know that CF has shaped me and my entire family by teaching us so many valuable lessons of love and compassion.
Thank you, Robin for being a part of our We Walk Together Mothers Retreat.
Hey all, if you have not already experienced the fine foods by Chefs Table Food Truck & Catering, it is time. Executive Chef Ryan Cotterell and Manager/Event Coordinator Ashley Cotterell are the husband and wife team who produce the 5 star quality food and service the valley is raving about. They are a restaurant on wheels, and yes they cater events, and are well known throughout the nation for its top quality food. Chefs Table Food Truck & Catering are strong supporters of our Cody Dieruf Benefit Foundation and they believe in our cause as we continue to help those with Cystic Fibrosis. You make a difference.
To date, Bridget is 14 years old. When she was 6 months old, she was rushed to the ER. Her parents were petrified of their daughters health. Bridget wasn’t breathing upon arrival. They said she had a collapsed lung and pneumonia. They said, “take her home and hold her, give her tylenol and check back with her doctor the next day”.
So her parents took Bridget home. The next morning she was back in the hospital, unresponsive. St. James Hospital life-flighted her to Missoula MT. They said she needed surgery. When they rushed her to surgery, they noticed a lot of her large intestines were dead. They removed a portion of her intestines, and her gallbladder. Surgery complete. Is the worst over?
No, Bridget kept feeling ill, and they didn’t know why. Missoula hospital then life-flighted her to Childrens Hospital in Portland Oregon in hopes that they could figure out why her little body kept shutting down. Portland decided to put her on the ECMO machine. A treatment that uses a pump to circulate blood through an artificial lung back into the bloodstream of a very ill baby.
Still no defining diagnosis. The surgeons went through a vein on her right side of her neck which helps supply blood to her brain.
By the time of her diagnosis the surgeons found that her vein was no good and they had to cauterize it to close it up. Bridget was diagnosed with Cystic Fibrosis.
In 14 years Bridget has had 4 major surgeries. Bridget is becoming accustomed to life-flights and ambulances. She spends most of her school year, holidays and summers being hospitalized. Her life consists of doctor appointments, breathing treatments, medications and hospitalizations. 2018 has proven to be a rough year.
Bridget has her whole life in the palm of her hands just waiting, waiting to be given a chance, to “just breathe” Her family could use some words of strength right now.
Interactive Six-Week Online Yoga Class Begins Saturday, September 15, 2018, 11:00 am – 12:30 pm PST
CFRI’s “Yoga for CF Health” is an online interactive class taught by Martha Modawell, Certified Yoga Instructor and mother of two children with CF.
The class is free to individuals with CF, as well as parents, spouses, partners and siblings of those with CF.
Get your mat and join your CF community members each week in a fun, healthy, and relaxing yoga session.
I met this momma at our 2017 Mothers Retreat “We Walk Together” Martha touched the hearts of all the moms that attended and she touched my soul. Be sure and attend this Six-Week Online Yoga Class.
The mothers’ retreat for moms of cystic fibrosis children is one way in which The Cody Dieruf Benefit Foundation
supports CF families. Our foundation, created in memory of our daughter, Cody,
honors Cody’s final request which was for us to help other families with Cystic Fibrosis.
We are on the countdown to September 28th, 2018. Our retreat will be held at 320 Ranch in beautiful Big Sky, Montana.
The Cody Dieruf Benefit Foundation is a non-profit organization that was established in honor of Cody Dieruf who passed away from Cystic Fibrosis on April 28, 2005 at the young age of 23.
Since then, the foundation has carried on the legacy of Cody’s life and helps other families living with this illness. The foundation has now grown into seven counties making sure that those with CF can obtain specialty care. It provides scholarships for recreation and fitness throughout all of Montana, and holds an annual Mothers Retreat for mothers of cystic fibrosis children.
The foundation strives to offer emotional and finacial support as well has hope to families effected by cystic fibrosis
To be grateful for each breath, is something we should practice every day. Not everyone has the ability to fill their lungs with ease. I’ve grown up knowing that. It is because of Cystic Fibrosis, that I feel so vastly that my lungs should never be taken for granted. Every breath, every inhale and every exhale. The way my respiratory system is so intricately and beautifully made. My body, for being healthy and carrying me throughout my journey of life. I refuse to not practice gratitude. To be grateful, every second, for another breath, every day for another day to experience life. I am grateful.
We should not take moments for granted. We should not take our time here, on this earth, for granted. We should not take our bodies for granted. We should embrace every second. We should inhale the goodness and the grace we have of another day of life.
Today, I will bask in the goodness of another day. I will be grateful. I will not take a single breath for granted. I will take my body as high and low as it can go. These moments, this life and my body- are not forever. I will make every second as beautiful as I possibly can- however I choose to.
Today, I am grateful for each breath.
18 year old Madison Ivey never got to grow up with her cousin Cody, who passed away from Cystic Fibrosis, but she holds her close to her heart. From a very young age, Madison would see a butterfly or hear a song and would know that it was Cody making herself known. She says that, “I feel that Cody is always giving me a sign, leading me to believe that I am on the right path”. ” Madison says that “Cody is her angel on this earth, always dancing to her own beat of the drum”.