Cystic Fibrosis in Children
Cystic Fibrosis in children can be challenging, but it’s important for you to know that you are not alone.
Decades ago, (CF) Cystic Fibrosis was thought of as an early death sentence. Living with CF meant spending much of one’s time struggling to breathe and trying to avoid suffering until succumbing to an untimely death in early childhood.
Fortunately, this is no longer the case. Today, people with cystic fibrosis are living longer than ever, usually into middle-adulthood and in some cases longer. Today’s generation is discovering that living with CF means learning to cope, daring to hope, and finding a new normal.
Get Support, get involved, Connect with other families with CF.
Have a plan. This disease can be somewhat overwhelming. Become familiar with the treatments, medications and therapies that you will need as you grow to manage your condition.
Have Strength. It is not like it used to be. Get educated. Trust your doctor and your CF center.
Plan for a full life. Have hope. Believe in a cure. Know that your parents will give you guidance.
People with CF can go to school, have friends, play sports, get married and have children, and even have a successful career.