News

Saving Bridget

 

It is with a heavy heart as I give you an update on Bridget. Bridget is being released from the Billings Deaconess to spend her last days in her home away from the hospital. Cystic Fibrosis is robbing her of her life.

This beautiful angel on earth has one request in her last days, and that is to spend time with her family and friends. She wants to be comfortable and away from pain that is engulfing her body. She says she does not want to see her family under stress due to her illness.

Instead of requesting a Make A Wish, due to her unselfish ask she is asking for financial freedom for her mom, Elizabeth. The Cody Dieruf Benefit Foundation will step in and try to make this as easy as possible. Elizabeth wants live butterflies to fly into the sky and One big Rose with 65 rainbow roses so that 65 people can lay a rose near Bridget at her funeral.

It is never easy to lose someone you are close to, especially your child’s life. CDBF will be working closely with Butte, MT as we bring the community together to supply food, help pay for bills, and give Bridget her wish of comfort. Please message me if you would like to help give Bridget and her family the love and support that they need right now. We hold you close Bridget.

Make a donation @ www.breathinisbelievin.org and leave a memo Saving Bridget.

We are so proud of this partnership

Recognizing our mutual desire to enhance the wellbeing of our community, YCCF, Breathin’ is Believin’, and the BZN International Film Festival are excited to be partnering up!

Passes are now on sale to BZN 2019, June 6-9 in Bozeman. USE THE URL BELOW TO BUY YOUR PASSES TO BZN 2019, and 25% of your pass purchase will be donated directly to Breathin’ Is Believin’! (Effective until April 15 at Ruckustix.com/events/bzn-breathinisbelievin)

Over 60 films will screen at the 2nd Annual BZN International Film Festival, in venues throughout downtown Bozeman, Montana, complemented by a rich slate of Q&A sessions, panel discussions, community-wide events and parties.

In an effort to change current statistics and elevate women’s voices, BZN spotlights female filmmakers and films that encourage greater stewardship of our beloved Mother Earth.

Meet Martha Modawell – Mother of the Month for April

 

 

My name is Martha I have 2 daughters with Cystic Fibrosis(CF) and a son who is a carrier. I have been married for 14 years to my hubby Colt who is a Nurse.

About me….wow a lot I can say, let’s start with my journey of the CF world.

I had my oldest very young and then my second soon after, they where Not diagnosed at birth, they where diagnosed after years of questions. Sierra was almost three years old and Maddie was 18 months. They where so small and looked okayish… When they were diagnosed  Colt and I just felt like our world was crumbling at our feet. I became a addict, Colt withdrawn.

Finally we got it together and now we stand firm together but it took us coming together.  I have since become a Yoga teacher, & yoga therapist. I bring the healing of Yoga to my family and then to the CF community.

I LOVE sharing my love of healing through Yoga at the Mother retreats, one in California and one in Montana.

I have been blessed with  two daughters to teach me the importance of being present and knowing how love truly is the most healing power for the heart and soul.

I now teach yoga for CF mothers retreats, online for the CF community, & I do a Podcast for CF moms with Paige Dunn from Utah.   I travel to CFRI conference in California to teach yoga to those attending.   I love this CF community.  We are tiny but so mighty, and to be part of it….it’s Magical!  You truly see the darkest of times and because of it, we see the Brightest of light and love.

 

 

Five Feet Apart

If you don’t understand Cystic Fibrosis(CF), this movie is an example of the emotional and physical pain that a person goes through living with CF. As Cody would say, “if I could only walk up a flight of stairs without losing breath”, becomes very real in this film. I encourage you all to go and see this movie, it will hit hard to some, it will draw awareness of CF to many and it will help those of you who do not know CF to get a better understanding of this disease. To us, it will be a reminder of our life with Cody and her life with cystic fibrosis.  Thanks to Regal Cinemas Gallatin, we were able to set up our stand up banners in front of movie theatre.

Meet Paige Dunn – Mother of the Month for March

Each year at our Mothers Retreat for mothers of Cystic Fibrosis children we get to meet some awesome moms. These mothers give us at CDBF fortitude, and the lasting friendships are so close to our hearts. Meet Paige Dunn from Utah, our March Mother of the Month.
 
Paige tells us her story.
 
We have been blessed with two beautiful babies, both who have CF. Aila was diagnosed at 3 weeks from the newborn screen and Wyatt was diagnosed at 1 week from a cord blood test.
 
Although this isn’t the path I imagined we would walk it has been such an extraordinary one. Extraordinarily hard but extraordinarily gorgeous! My sweet children have taught me to be present, to enjoy every moment and give love.
 
My personal spiritual/mental battle
with Cystic Fibrosis as a caregiver has opened my soul and allowed me to blossom in ways I didn’t know possible. The mothers retreat was a catalyst for my learning and understanding which is why I feel called to be involved with supporting my fellow CF Moms and why Martha and I have started a podcast just for CF Mothers!! The first episode of the “CF Mom Tribe” podcast will air next week! Watch for details.

CF Peer Connect

Raising Cody with Cystic Fibrosis, we did not have the opportunities that are being offered now. We missed out on all the new medications that extend lives, and we did not have the connection with the CF world that so many of you have.
 
The Cody Dieruf Benefit Foundation is proud to promote to you CF Peer Connect. You are not alone living with Cystic Fibrosis(CF). CF Peer Connect is a topic-based peer mentoring program for people with CF.
Ages from 16 and older.
 
It is known that Cystic Fibrosis can be a lonely disease. I know this, I lived it.
 
Through this program, those of you with CF can talk with and learn from someone who has gone through a similar journey. Please share.
 
cff.org/PeerConnect
www.breathinisbelievin.org
#breathe#cysticfibrosis#peerconnect#CFF#CodyDieruf

 

Hi, My Name is Tyler

 

Hi, my name is Tyler, It’s interesting how hard it is sometimes to tell people I have Cystic Fibrosis. I don’t hide the fact that I have CF and I like telling people about it when they have questions, but for some reason if people don’t know I have it I don’t like talking about it. I don’t like feeling that people view me differently, I like feeling the same as everyone. However, the truth is that I am different. I have more things I need to do to try and maintain my health and that’s ok. It’s ok to feel self conscious and to feel insecure sometimes. We all go through ups and downs and it is never weakness to recognize that we aren’t perfect. With each passing year, the more I realize that everybody has something they are dealing with, some things you can see and others you can’t. We are all imperfect people and we sometimes forget that. It’s ok to go through tough times, it’s ok to feel sad, the most important thing is to remember that you are loved and can get through it. I hope we can all be more caring and understanding of each others individual hardships. We are all in this together!

Vertex Pharmaceuticals Stands Behind The Cody Dieruf Benefit Foundation

The Cody Dieruf Benefit Foundation is excited to announce that VERTEX PHARMACEUTICALS INCORPORATED has granted us funding to continue with granting scholarships for our Recreation and Fitness Program. To the families in Montana living with Cystic Fibrosis and would like to apply go to www.breathinisbelievin.org and fill out an application.

It is a proven fact that exercise and fitness can help maintain lung function.

Thank you Vertex for believing in us. To learn more about Vertex go to https://www.vrtx.com

 

Mother of the Month for February 2019

 

Finding out your first born has a disease is so many things…
Hard to accept
Lifechanging
Stressful
Sad
and on and on.

 

At 23 I was like most first time expectant mothers. Naïve to the possibility that everything wouldn’t just be perfect. When we received confirmation that she had this thing called Cystic Fibrosis(CF) I was actually relieved. I have always been the person who would rather know the worst so I can work the problem.

Having it be your child is another new level and will teach you who you are and just how strong you can be.

This journey has been incredible. Incredibly hard. Incredibly beautiful.

For most of our daughters life, our biggest struggle was just keeping weight on her. Which ironically is hard
when the rest of the world is trying to loose weight. I have always told her to look for the positives. While we have always fought to keep things as normal as possible, these kids are anything but normal.

Breanna has always been my creative artist, gypsy, bohemian, tyrant, comedian and stubborn girl.

Now she is 18 and married. How did this happen? Where did the time go? When she was diagnosed her expected life was only 18 years.

We are so grateful for every day and that we survived the teenage craziness. Now we get to watch the next chapter unfold. Blessed each day.

2019 NCAA March Madness Calcutta

We all want a cure for Cystic Fibrosis(CF) and we all want to see our families living with CF given quality of life.  The NCAA March Madness Calcutta is striving to make this happen.

 

Please join us on March 20th, 2019 at Butte Country Club in good ole Butte, MT.

The Cody Dieruf Benefit Foundation is proud to be a part of the 2019 NCAA March Madness Calcutta. This is the 6th Annual Cystic Fibrosis Benefit and our first time being involved.

Meet Former Butte High and University of Montana star Colt Anderson  as the special guest of the evening . The public is welcome to attend.    Registration will begin at 5:30 p.m and the auction will be held at 7:30 p.m. at the Country Club.

Appetizers will be served. The public is welcome, but you must be 18 or older to attend. The Calcutta auction is licensed by the State of Montana.

90% of the total bids will be paid back to participating bidders, 10% goes to Cystic Fibrosis Foundation and a portion of the silent auction items go to The Cody Dieruf Benefit Foundation.

Come to Butte, MT and enjoy this fun evening with friends. 2019 FINAL poster