Because of our Empowerment Sponsor Chef’s Table Truck and Catering, we are bringing to you A Night of Hope. This is a private event, and tickets are selling fast. We expect a full house. We will bring the house down. Listen to us on XL Country on May 8, at 8:30 and hear all about it.
Monies raised through this event will go directly to helping our Cystic Fibrosis families living within 7 counties, and providing scholarships for Recreation and Fitness, and our Mothers Retreat for moms of cystic fibrosis children.
A Night of Hope is in memory of Cody Dieruf, Eli Tripp and Bridget Mallo and all those with Cystic Fibrosis.
We care, because breathin
Meet Elaina Pyke. Elaina is one of our special mothers who has attended our “We Walk Together” Mother’s Retreat. It is always so inspiring to read the stories of our mothers as time passes. This is not only Mothers Day month but also CF Awareness Month. Happy Mothers Day to all of our moms of CF children.
My name is Elaina, I’m a single parent of 3 incredible children Lillyan 15, Olivia 8 and Mario (aka Baby Mario) 4 years old. Mario has Cystic Fibrosis (CF).
Mario’s father and I found out we are CF carriers after prenatal screening during my pregnancy with Olivia. She does not have CF, but inherited a CF trait. Baby Mario was diagnosed prenatally at 26 weeks via amniocentesis results came back positive down to his genetic mutation Homozygous Delta F508 which affects the digestive and respiratory system. The diagnosis was later confirmed with both new born screens and sweat test.
Life with CF for us isn’t black and white, we have 2 crazy households that seem to function at their best. We’re living and learning our way of life with CF along the way. Hell yes our routines can be hectic, treatments don’t always occur at the same time of day, but hey, they get done.
Reminding ourselves to have grace is often forgotten but so important for us to move forward. I learned the importance of giving myself grace during the 2017 Montana We Walk Together Mothers retreat. I’ve also sparked a passion to become more involved with the CF community, but I wasn’t sure how and when…
Once 2019 came around, multiple opportunities arose and I decided to take advantage of them. I’m extremely excited to be a member of the Mary Bridge CF Parent Advisory Board and looking to joining the Mary Bridge Hospital Parent Advisory Council as well. I find fulfillment in advocacy and I’m looking forward to undertake these positions as a CF mother and representing our community the best way I can.
With all these opportunities evolving in my life I’m proud to say I’m still connected to the best group of women I ever met on our Montana Mothers Retreat FB group. It’s reassuring to know I’m not alone and we’re all traveling one hell of a journey with CF together.
It is with a heavy heart as I give you an update on Bridget. Bridget is being released from the Billings Deaconess to spend her last days in her home away from the hospital. Cystic Fibrosis is robbing her of her life.
This beautiful angel on earth has one request in her last days, and that is to spend time with her family and friends. She wants to be comfortable and away from pain that is engulfing her body. She says she does not want to see her family under stress due to her illness.
Instead of requesting a Make A Wish, due to her unselfish ask she is asking for financial freedom for her mom, Elizabeth. The Cody Dieruf Benefit Foundation will step in and try to make this as easy as possible. Elizabeth wants live butterflies to fly into the sky and One big Rose with 65 rainbow roses so that 65 people can lay a rose near Bridget at her funeral.
It is never easy to lose someone you are close to, especially your child’s life. CDBF will be working closely with Butte, MT as we bring the community together to supply food, help pay for bills, and give Bridget her wish of comfort. Please message me if you would like to help give Bridget and her family the love and support that they need right now. We hold you close Bridget.
Make a donation @ www.breathinisbelievin.org and leave a memo Saving Bridget.
My name is Martha I have 2 daughters with Cystic Fibrosis(CF) and a son who is a carrier. I have been married for 14 years to my hubby Colt who is a Nurse.
About me….wow a lot I can say, let’s start with my journey of the CF world.
I had my oldest very young and then my second soon after, they where Not diagnosed at birth, they where diagnosed after years of questions. Sierra was almost three years old and Maddie was 18 months. They where so small and looked okayish… When they were diagnosed Colt and I just felt like our world was crumbling at our feet. I became a addict, Colt withdrawn.
Finally we got it together and now we stand firm together but it took us coming together. I have since become a Yoga teacher, & yoga therapist. I bring the healing of Yoga to my family and then to the CF community.
I LOVE sharing my love of healing through Yoga at the Mother retreats, one in California and one in Montana.
I have been blessed with two daughters to teach me the importance of being present and knowing how love truly is the most healing power for the heart and soul.
I now teach yoga for CF mothers retreats, online for the CF community, & I do a Podcast for CF moms with Paige Dunn from Utah. I travel to CFRI conference in California to teach yoga to those attending. I love this CF community. We are tiny but so mighty, and to be part of it….it’s Magical! You truly see the darkest of times and because of it, we see the Brightest of light and love.
If you don’t understand Cystic Fibrosis(CF), this movie is an example of the emotional and physical pain that a person goes through living with CF. As Cody would say, “if I could only walk up a flight of stairs without losing breath”, becomes very real in this film. I encourage you all to go and see this movie, it will hit hard to some, it will draw awareness of CF to many and it will help those of you who do not know CF to get a better understanding of this disease. To us, it will be a reminder of our life with Cody and her life with cystic fibrosis. Thanks to Regal Cinemas Gallatin, we were able to set up our stand up banners in front of movie theatre.
Hi, my name is Tyler, It’s interesting how hard it is sometimes to tell people I have Cystic Fibrosis. I don’t hide the fact that I have CF and I like telling people about it when they have questions, but for some reason if people don’t know I have it I don’t like talking about it. I don’t like feeling that people view me differently, I like feeling the same as everyone. However, the truth is that I am different. I have more things I need to do to try and maintain my health and that’s ok. It’s ok to feel self conscious and to feel insecure sometimes. We all go through ups and downs and it is never weakness to recognize that we aren’t perfect. With each passing year, the more I realize that everybody has something they are dealing with, some things you can see and others you can’t. We are all imperfect people and we sometimes forget that. It’s ok to go through tough times, it’s ok to feel sad, the most important thing is to remember that you are loved and can get through it. I hope we can all be more caring and understanding of each others individual hardships. We are all in this together!