Attain Health was created in 2016 through the collaborative efforts of Mike and Kat Porco from Red Lodge, Montana.
Attain Health empowers patients with cystic fibrosis by partnering with them to develop the skills necessary
to optimize daily care and regain control over their health. Attain’s platform of Integrative Health
and Physical Performance Coaching offers clients the opportunity to set personal health goals,
develop implementation plans, establish positive habits and overcome inevitable setbacks to
achieve their vision of health.
Attain Health has served over 125 members of the cystic fibrosis community.
Together, we can make a world a better place.
A special Thank you to Meghan’s Light Inc. Sometimes people are brought into our world for a reason. Meghans Light was formed by Meghan’s family after cystic fibrosis took her life at the age of 39.
The Cody Dieruf Benefit Foundation is in the planning stages for their 2nd annual Mothers Retreat and Meghan’s Light Inc. is sending a mother from the New York area to this retreat in beautiful Big Sky Montana.
We are forever touched by the goodness of others in this fight against cystic fibrosis. From near and far we help each other. Words can not describe how incredible and compasionate Meghan’s Light portrays. From Boston to Montana, our journey begins to get to know each other better.
Meghan’s Light, whose mission is to support finding a cure for cystic fibrosis and to inspire hope and courage in patients, families and communities impacted by cystic fibrosis. Meghan’s Light remembers the light without and the light within that radiated from Meghan during her earthly journey and the continued presence of her light that shines brightly today.
Robin Modlin, mother of Anna with CF and Sara without CF
I always wanted to be a mom. My first child was my entry into a special type of motherhood. At 18 months old and being kept alive with a ventilator in the ICU Anna was diagnosed with cystic fibrosis. I was devastated. My whole sense of self, my identity as a mother, as a woman wanting a family, changed. Anna survived that bout and came home. I became a mom of a CF child. There was so much to get used to. Our routines revolved around treatments and eating and avoiding illness. This is the way it is in a household with a CF child. I had to decide how I was going to do this job, this job of motherhood that was so very different then I imagined it to be. How would I mother a child whose life expectancy was so unsure? Right away I realized that if her life was to be short there would be many blessings for us and if she should break the odds and live a longer life there also would be blessings. Who was I to say or know what it was to be? This was Anna’s path and I was to be the best mother I could be to help her realize who she was in whatever length of time she had. I had to let go into the unknowable.
It has been that letting go into the unknowable that has been such a significant part of my life as Anna’s mom. I have come to understand that even with all of the statistics of life expectancy and the real fear and reasonable expectation of death right around the corner we really don’t know what is to become of our children with this disease. Each CF child has his/her own story to be lived. There are trends and there are dear children who still die much to young in spite of the better care available today and there are those who do not get sick until long into adulthood. And there are miraculous treatments like lung transplants that totally change the experience of this disease. It is just that when we begin this journey we don’t know which it will be. As CF moms we all begin on that same ground and in order to survive we must befriend the unknown.
We have to take each day as it comes. Good days bring relief and difficult days bring tears, tension, fear and pain. Taking care of our selves as mothers is crucial. We want to meet each day as the best mom we can be. We also need to know ourselves as people with other talents and wants. We need to carve out time for our healing and personal expression. This can be difficult at best when our children are struggling, but we must. I did this for myself as I raised Anna. First of all I had a strong CF community in CFRI and I made sure that I got away on my own, that I had quiet time and did things I loved to do. Sometimes I did not do it until I was almost ready to pull my hair out, but I did it. Self care, meditation, exercise, private retreat and art work saved me.
My daughter is about to turn 37 years old! How did that happen? She received new lungs 7 ½ years ago and our lives totally changed again. Her life is still uncertain, as is mine and yours but she has lived hers to the fullest. I still have the pain of being a CF mom. I don’t think that ever leaves. Because of that, 4 years ago I started CFRI’s original CF mom’s retreat called Embrace. Last year I also helped to design and implement the Cody Dieruf Benefit Foundation’s CF mom’s retreat, We Walk Together. We have welcomed CF moms from around the country to develop a community, learn about self care, and have a respite. The amount of healing that happens from the moment the moms enter and then must go home back to their lives is remarkable and such a gift. Magic happens when moms can be part of their tribe with others who “get” what their life is about. We have watched them to continue to support each other between retreats as well. This has been the missing piece for us moms. What has been missing in CF care is the recognition of the caregiver’s need for well being. Moms need to learn that it is OK to take care of themselves and be offered permission and ways to do so. I am so heartened by the tremendous success of Embrace and now We Walk Together. CF moms need each other, need to tell their stories, need to listen and need to be heard.
We are excited in our planning stages of 2018 Mothers Retreat to be held in beautiful Big Sky Montana at the 320 Ranch. Register online at http://www.breathinisbelievin.org.
Prepare for an enlightening weekend as all of us mothers Walk Together in our journey of Cystic Fibrosis.
The CDBF 2018 Mother’s Retreat will provide participants with a restful weekend, free from the daily
responsibilities of caring for a child with CF. Participating mothers will find support with one another, learn
new approaches to caring for themselves and return home renewed.
George and I are always so touched when we know that we can give to those with Cystic Fibrosis. We have such strong community support and we are forever grateful.
2018 brings us to new planning for our 2018 Mothers Retreat. Watch for details.
Red Lodge MT., a community of about 2500, joined forces with Gena Burghoff, owner of Prerogative Kitchen, and donated all gratuities for the month of April in honor of a little gal who lives in the community and has cystic fibrosis. They collected $3700.00. A beautiful and strong gesture. Prerogative Kitchen is known for helping others in their community. Maylie is 12 years old and is loved by everyone who meets her. She has a strong dispostion.
Preogative Kitchen says, WE ARE PROUD TO DONATE TO THIS AMAZING CAUSE, AND WE HOPE TO BRING AWARENESS TO The Cody Dieruf Benefit ORGANIZATION.” It is the motto of Preogative Kitchen, When you give, We give Back.
We at CDBf are honored.
I am excited to be a guest speaker amongst many others for the Innovate, Create and Collaborate Conference held at The Baxter on May 23, 2018. This conference is
going to be very empowering and I am honored to be a part of this partnership.
Ginny Dieruf will be speaking at The Circle of Execellance Conference at MSU Thursday May, 10, 2018. The topic, “She Inspired Me.” Her daughter, Cody was diagnosed with Cystic Fibrosis at the age of 9 years old. At the age of 23, Cystic Fibrosis took her life. Lost to another world but still touching lives through her Foundation, Ginny speaks on how Cody lived her life with joy and with determination for living.
In Cody’s own words, ” I am armed with bravery, and this playground is as much mine as it is yours”, describes her courage of living with a disease for which their is no cure.