News

Special Thanks to Beartooth IGA in Red Lodge, MT

Everyday, I am so touched by the kindness of others.  Welcome to The Cody Team, Beartooth IGA Market.

Beartooth IGA has chosen The Cody DIeruf Benefit Foundation for their Round UP Campaign in July.  At all registrars with a picture of one of their own living in Red Lodge with this disease, they ask the customers if they would like to “Round Up” to the nearest dollar and support The Cody Foundation.  This funding helps support those with Cytsic Fibrosis.

This lil gal loves her sister, Maylie, who has cystic fibrosis, so much.  They have a special closeness as if they were twins even though they are two years apart.   This comes from the love and support of a beautiful family, and Red Lodge opens up there hearts in so many ways.

Cystic fibrosis is a disease that affects not only the patient but the entire family, which needs to adapt to a new reality. Continually seeking knowledge and news about the disease can help patients and families stay updated and prepared for any unexpected event.

Beartooth IGA has made it there mission to help spread awareness of this disase called cystic fibrosis.

Thank you to the people of Red Lodge, MT.

 

 

 

 

2018 Mothers Retreat Held in Beautiful Big Sky Montana – 320 Ranch

Where else would you want to go to have a 3 day retreat of rest, rejuvenation, relaxation and peace in Montana!

Welcome to our attending Mothers of Cystic Fibrosis children to the 320 ranch on Sept 28, 2018 as we explore our inner selves.

The Cody Dieruf Benefit Foundation began our first annual mothers retreat, after Ginny was invited to speak at The Cystic FIbrosis Research Inc conference in 2016.  With CFRI expertise and direction and the numoruos volunteer hours to prepare by Laura Mentch, Montana held its first mothers retreat in 2017.

Ginny, mother to Cody, saw the need for mothers, like herself, to find a time to bond with other mothers who are walking the sames shoes of an illness.  An illness called cystic fibrosis.  Thanks to our sponsors, and community support, no mother has to pay for this weekend retreat.

2019 brings a whole new venture to our CDBF retreats as we explore moving them into other states.

 

Many thanks to Lou Raisler

 

 


It is with pride that we spent the evening with Lou Raisler and his gal pal, Myra.  Lou has donated numerous rifles to our 2018 auction and to top it off, he donated a fishing boat that was sold at a high value.   Lou says, “All I have to do is look at Cody’s picture and her beautiful words about life.  I want to help in anyway that I can, he says”.

Cystic Fibrosis is real, and our community knows it.  George, myself and Levi and his family are so emcompassed by the kindness of others.  Happy Birthday, Lou and thank you for being a part of Team Cody.

Team Cody

It takes a team and The Office of Gallatin County in Bozeman, MT. formed a softball team and played with hearts full of love in hopes to draw awareness of Cystic Fibrosis.  Being strong supporters of The Cody Dieruf Benefit Foundation, Gallatin County Softball Team would like to stike out Cystic Fibrosis.

Whether you make a donation, spread awareness, become an organ donor, or just simply believe in hope for a cure, CDBF hopes that the kindness of others, will inspire you to always try and help people in need and to truly make a difference in the life of those with this disease called cystic fibrosis.

As A Mother

 

As a mother of a cystic fibrosis child, I look forward to our 2018 Mothers Retreat, a retreat for moms of children with cystic fibrosis.  As we joined together in 2017,  meeting all the moms and sharing a weekend of stories, has truly touched my life.

Nestled in the mountains on the Gallatin River, 20 women come together for a weekend away from the responsibilities of work, family and caring for a child with CF. We, as moms create a community as we share our journeys and learn how the stress of caregiving affects our children, our families and ourselves.

The support and community created by us mothers has continued past our time together.  We share the highs and lows of our lives and support one another through lasting friendships.

I am finally connecting with the community of mothers that I needed for so long.

We welcome you to join us in this remarkable weekend of peace.

September 28-30 at 320 Ranch in Big Sky Montana, where you can breathe clean mountainous air.

I Stand Tall

 

stand tall. Wearing seemingly impenetrable armor, a rented costume that I unfortunately do not do proud on many days. Stripes and patches clutter my torso, ultimately representing both my daughters, and their unique life experiences, as they continually intersect with CF. 

This mask, I wear it well, it is hard at times for me to recognize that it is not my own skin. It mimics each part of my being. It hides a wariness that is not seen by many. Those not intimately familiar with the lines that streak my face would never see through to the conflict that muddles my heart. There is this fragility that quietly lives behind the laughs and smiles, waiting between the eves of my soul. I admit that at times it bathes me in falsities, protecting me from the tears that sit, at the ready. One wise insightful vision, one cough, one culture result away from exposing my vulnerability to the world. 

I admittedly live in a world that could be described as misperceived resilience, solely because I am still standing. People presume that when your children hurt in the ways ours have, you break. I reject that notion, as it infers that breaking is an option.

I sit now, perplexed. Questioning what strength really is in this society. Is it the merely the absence of weakness? And if that is the case, then what defines weakness? Is it being vulnerable? Is it questioning why the world works as it does? Is it accepting why one family continually boasts success while others battle unrelenting hardship? How do we gauge the tenacity and solidity of humans? I look to my fellow warrior moms and question if strength is not actually measured by the ability to take another step when nothing else makes sense, because I see no greater strength than that colossal expression of resilience. 

I recognize the atrocities that exist. I recognize that some of those exist within my children and their formative experiences. But, I also see the countless moments of beauty and supremacy that coincide with these in great and obvious disparity. I try to make sense of this thought chaos that is whirling through my mind. 

 

I glance out the window, the rain is coming down in summer storm fashion, obstructing the view. Reminding me of how blinded I can become by imposing my unfounded fears on a future which has yet to be actualized. 

I observe my mind as it follows my physical body, seeking camaraderie with this unrelenting rain. I ache to connect with this emotion, almost a reassurance of my guiding principles to be tenacious. And then as suddenly as it began, the rain stops. As I emerge through the doors, an unexpected break in the clouds startles me, a stream of sunlight warms my face. I am bathed in the reassurance that every storm transitions into a peaceful moment where the rain slows to a mist, the clouds part and sunshine once again illuminates the path in front of me. 

Meet Mike and Kat Porco with Attain Health.

 

 

Attain Health was created in 2016 through the collaborative efforts of Mike and Kat Porco from Red Lodge, Montana.

Attain Health empowers patients with cystic fibrosis by partnering with them to develop the skills necessary

to optimize daily care and regain control over their health. Attain’s platform of Integrative  Health

and Physical Performance Coaching offers clients the opportunity to set personal health goals,

develop implementation plans, establish positive habits and overcome inevitable setbacks to

achieve their vision of health.

Attain Health has served over 125 members of the cystic fibrosis community.

Together, we can make a world a better place.

http://attainhealth.today

 

 

65 Wellness Wishes

A special Thank you to Meghan’s Light Inc.  Sometimes people are brought into our world for a reason.  Meghans Light was formed by Meghan’s family after cystic fibrosis took her life at the age of 39.  
The Cody Dieruf Benefit Foundation is in the planning stages for their 2nd annual Mothers Retreat and Meghan’s Light Inc. is sending a mother from the New York area to this retreat in beautiful Big Sky Montana.
We are forever touched by the goodness of others in this fight against cystic fibrosis.  From near and far we help each other.  Words can not describe how incredible and compasionate Meghan’s Light portrays.  From Boston to Montana, our journey begins to get to know each other better.
 
Meghan’s Light, whose mission is to support finding a cure for cystic fibrosis and to inspire hope and courage in patients, families and communities impacted by cystic fibrosis. Meghan’s Light remembers the light without and the light within that radiated from Meghan during her earthly journey and the continued presence of her light that shines brightly today.

Being a CF Mom

 

Robin Modlin, mother of Anna with CF and Sara without CF 

I always wanted to be a mom. My first child was my entry into a special type of  motherhood. At 18 months old and being kept alive with a ventilator in the ICU Anna was diagnosed with cystic fibrosis. I was devastated. My whole sense of self, my identity as a mother, as a woman wanting a family, changed. Anna survived that bout and came home. I became a mom of a CF child. There was so much to get used to. Our routines revolved around treatments and eating and avoiding illness. This is the way it is in a household with a CF child. I had to decide how I was going to do this job, this job of motherhood that was so very different then I imagined it to be. How would I mother a child whose life expectancy was so unsure? Right away I realized that if her life was to be short there would be many blessings for us and if she should break the odds and live a longer life there also would be blessings. Who was I to say or know what it was to be? This was Anna’s path and I was to be the best mother I could be to help her realize who she was in whatever length of time she had. I had to let go into the unknowable. 

It has been that letting go into the unknowable that has been such a significant part of my life as Anna’s mom. I have come to understand that even with all of the statistics of life expectancy and the real fear and reasonable expectation of death right around the corner we really don’t know what is to become of our children with this disease. Each CF child has his/her own story to be lived. There are trends and there are dear children who still die much to young in spite of the better care available today and there are those who do not get sick until long into adulthood. And there are miraculous treatments like lung transplants that totally change the experience of this disease. It is just that when we begin this journey we don’t know which it will be. As CF moms we all begin on that same ground and in order to survive we must befriend the unknown. 

We have to take each day as it comes. Good days bring relief and difficult days bring tears, tension, fear and pain. Taking care of our selves as mothers is crucial. We want to meet each day as the best mom we can be. We also need to know ourselves as people with other talents and wants. We need to carve out time for our healing and personal expression. This can be difficult at best when our children are struggling, but we must. I did this for myself as I raised Anna. First of all I had a strong CF community in CFRI and I made sure that I got away on my own, that I had quiet time and did things I loved to do. Sometimes I did not do it until I was almost ready to pull my hair out, but I did it. Self care, meditation, exercise, private retreat and art work saved me.

My daughter is about to turn 37 years old! How did that happen? She received new lungs 7 ½ years ago and our lives totally changed again. Her life is still uncertain, as is mine and yours but she has lived hers to the fullest. I still have the pain of being a CF mom. I don’t think that ever leaves. Because of that, 4 years ago I started CFRI’s original CF mom’s retreat called Embrace. Last year I also helped to design and implement the Cody Dieruf Benefit Foundation’s CF mom’s retreat, We Walk Together. We have welcomed CF moms from around the country to develop a community, learn about self care, and have a respite. The amount of healing that happens from the moment the moms enter and then must go home back to their lives is remarkable and such a gift. Magic happens when moms can be part of their tribe with others who “get” what their life is about. We have watched them to continue to support each other between retreats as well. This has been the missing piece for us moms. What has been missing in CF care is the recognition of the caregiver’s need for well being. Moms need to learn that it is OK to take care of themselves and be offered permission and ways to do so. I am so heartened by the tremendous success of Embrace and now We Walk Together. CF moms need each other, need to tell their stories, need to listen and need to be heard.

Register Now for 2018 Mothers Retreat in Montana

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We are excited in our planning stages of 2018 Mothers Retreat to be held in beautiful Big Sky Montana at the 320 Ranch.  Register online at http://www.breathinisbelievin.org.

Prepare for an enlightening weekend as all of us mothers Walk Together in our journey of Cystic Fibrosis.

The CDBF 2018 Mother’s Retreat will provide participants with a restful weekend, free from the daily

responsibilities of caring for a child with CF. Participating mothers will find support with one another, learn

new approaches to caring for themselves and return home renewed.