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Young man hero to a little girl with Cystic Fibrosis!

 

About two years ago, I had the pleasure of being able to meet the bravest, most intelligent, full-hearted little girl that I would ever get to meet. It was early December, the “Christmas hype” as I like call it, was in full affect. My mom, Denise Lampi-Kok, is a bartender at a local brewery in Billings. When May would be in treatment in Billings, her mom would always stop in to be waited on by my mom. They formed a friendship through her visits, which lead to them planning an evening where my brother and I could go and watch “Merry Christmas Charlie Brown” while eating popcorn and sipping on some hot chocolate with Maylie.

            The minute I walked through the door I felt an instant connection with May. I had enough of an understanding about CF (Cystic Fibrosis) to know that what she goes through every day is no simple task.  I felt for this young girl like I hadn’t anyone before; the best way I can describe the feeling is that I needed to protect her, be there for her. I remember how smart she was already and such a young age. Being homeschooled by her mother, it came to no surprise to me her level of intelligence!

            I remember when we were saying goodbye to her that day at her hospitalization,  she told me that she loved me. Hearing that from her nearly brought me to tears. I knew from that moment that I wanted to do more. I wasn’t able to see May when she would be in Billings during the summers, due to my baseball schedule, but my mom would always visit and spoil the girls whenever they came into Uberbrew.

            After school began in the fall of my senior year, May was back in the hospital for treatment. Being a part of the Billings Skyview cross country team, I thought it would be a really cool idea if some of the varsity members could come down and meet May. My team really went all out for her! They got her flowers, a balloon, sparkling water, and a stuffed bear (We named it falcon being that our cross-town rival are the bears).

            My last visit with May was during my Thanksgiving break. I had just got back home from college, Boise State, and I had heard that May was in the hospital again. I had planned out an evening of watching the Polar Express, while eating some snacks. I also had to bring her sister and her some Boise State t-shirts! After I left that evening as she was falling asleep, she told her mom that she had one of the best nights of her life. I can honestly say, that I shared that feeling with her.

            May has shown me in the last three years of knowing her what it takes to be strong. It’s not the overall size of the person, but rather the size of the heart that defines strength of an individual. I recently was emitted to the hospital for pains in my side and had to stay overnight. Though I was terrified of what might be wrong with me, I kept thinking of May and her strength to help me through my pain. Not many people could have touched me the way she did.

She always has me feeling like, what can I do that’s more than I’m doing now? What can I do to help? I’ve decided to ask for donations to provide to the Cody Dieruf Benefit Foundation because of what May has done to make my heart grow, and I’m hoping that others may find the will to give, just like May did to me.

www.breathinisbelievin.org

Thank you, Sheri Shamblin and Pfizer for Climb for Cody

Sheri Shamblin, in 2017, did a “Climb for Cody” campaign.  She raised over $13,000.  Sheri climbed 50 summits in honor of her 50th birthday.  Sheri matched the donations and than along comes Pfizer with their match.

Sheri says,

When I hike in the mountains I feel very alive, present and connected to my surroundings. The
ability to climb mountains, to have the sensation of my heart pounding in my chest and my lungs
working hard to fuel my body with oxygen is a blessing I don’t take for granted. For those living
with Cystic Fibrosis, like my brother Michael and my cousin Stacy, every breath is precious, and
sometimes just getting through the day feels like climbing a mountain.
It was through my brother Michael that I came to know about the Cody Dieruf Benefit Foundation
that was formed to honor of Cody Nicole Dieruf. Cody passed away April 28, 2005,
from Cystic Fibrosis at the age of 23. Her family formed the Foundation to carry on Cody’s
legacy and to help others who live with Cystic Fibrosis. The Foundation has helped patients by
covering costs of medicines, co-pays, and therapy equipment.
In lieu of gifts or a grand celebration, Sheri invited family and friends to make a donation to The Cody
Dieruf Benefit Foundation. Sheri matched every dollar donated for Climb for Cody, and Pfizer,
who generously offers a matching gift program to employees,  also matched each dollar.
The Cody Foundation is saying thank you again, Sheri.  Your gift of labor and love keep on giving to those with Cystic Fibosis.  And Thank you to Pfizer for offering a matching program for employees.

 

Vertex grant money available for Recreation and Fitness Scholarships for those in Montana

Nothing gives us more joy than to provide a scholarship for Recreation and Fitness to those with Cystic Fibrosis in Montana.  Vertex has allowed us to do just that.  Apply for your scholarship @ www.breathinisbelievin.org or message me and see how exercise can benefit your health.  Thank you Vertex for believing in us and our collaborating partners, CFLF, Coach Ed and Miles for CF.

The drawing is March 24, 2018 at our 13th annual auction

The raffle tickets for this beautiful Winchester Model 70 Featherweight will be drawn at our 13th annual live and silent auction on March 24, 2018.  You need not be present to win but we would love to have you attend.   All monies raised from this raffle will benefit our medical program providing specialty care for those with Cystic Fibrosis in 6 counties. Gallatin, Carbon, Broadwater, Madison, Park & Stillwater.  This gun was generously donated by Lou Raisler, from Bozeman, MT.  www.breathinisbelievin.org

The Cody Dieruf Benefit Foundation welcomes Jackie Sather to our board

Jackie Sather Joins The Cody Dieruf Benefit Foundation Board

We are so excited to have Jackie Sather as a new board member. Jackie says that she “is in complete awe of the strength and optimism of the families and individuals facing the hardships of cystic fibrosis.  CDBF’s programs and efforts help those affected by this disease – and perhaps – offers a bit of hope.   Being part of this board offers me the opportunity to continue to build on those efforts others have started.

2018 2nd annual Mothers Retreat

We Walk Together

The Cody Dieruf Benefit Foundation is holding its 2nd annual mothers retreat at the 320 ranch on September 28th, 29th, and 30th.  This is a 3-day event for moms of CF children to get together and find support and a new approach to caring for themselves.  It also helps them return home with renewed insights to cope with ongoing needs of their
families.

2017 Mother’s Retreat a Great Success!

Our 2017 Mother’s Retreat turned out just as we hoped- a wonderful event for mother’s of children with Cystic Fibrosis to bond and reenergize their strength to help their children fight.  Here are some photos and kind words from those who attended:

So the official “We Walk Together,” CF mom retreat started today and WOW…I honestly can’t even try to explain in words how good it feels to relate, be able to listen, feel, and be heard by ears and minds that know and do…in the cf world. !!! I could never explain in words the level of good raw tears that have already been shed here just this evening from the introduction to a moms story, and closing. The last picture ended our evening with the honoring of our families and children with CF, we cried, We laughed and we cried, as we expressed our gratitude and said a few words of what this already means for us all! Mine was about not having the strength for a few days…to break down that wall…free the emotions, the struggles, feel renewed and inspired by each other. Embracing our CF heroes that are here with us sharing their stories of strength, hope, life after transplant etc!!! Wow, this is amazing and it’s just begun. I’m beyond thankful to share in this time with some excellent woman and newfound friendships! – Tonya

 

This weekend was filled with probably the most amazing energy and spiritual strengthening I have ever felt — this all felt through drumming, singing, tears, journaling, jewelry making, listening, stories of grief, stories of blessings, stories of triumph through transplant, friendships, feelings of belonging, acceptance, and the empowerment as we walked together this weekend in one of the most beautiful states ever-I will truly take a part of each of these beautiful mothers with me and keep in my heart always. Truly an experience of a lifetime and every mom/dad of a child with CF or other challenges your family is faced with must attend one retreat in their lifetime! – Courtney

 

Thank you so much for making your CF Mom Retreat so fabulous. Making it possible for each of those moms to come at no cost and to be treated with such care was so wonderful for them (and me too)!. We did it and the healing was tremendous. Those moms will never be the same. They will now go back with more strength and power than they even realized they could have. Now it is up to them to continue to care for themselves and I believe they will make the effort. That can be all the difference in being able to healthfully and successfully cope with the day to day caring for these very special children. I am so glad that you participated Ginny and I hope that healing came your way as well. And you too Laura, your ability to hold the space and guide the retreat was a gift for everyone. Great Success!!!!! – Steph

 

May the healing wave continue to embrace you – Isa

 

How blessed I am to have these women as my teachers. Joy and love at 320 Ranch in Big Sky, Montana at the CF Mother’s Retreat. With Ginny Dieruf and the Cody Dieruf Foundation – Ang

 

Thank you, Ginny, you’re such an inspiration and a guiding light to show all of us that we can do all things even in the weakest moments and you shine through all of us with your love and dedication that was put fourth in making something so special for so many of us. – Krista

 

Words can never express the vibrant energy that filled one room. – Felicia

I was able to feel the energy that emerged out of us & to bring us all joy is something very few get to experience in this thing called life. My experience on the We Walk Together was the most amazing & heartfelt.   Mothers coming together from all walks f life to share one thing in common made this world fell less small wishing the CF community. The enlightenment that it brought to my life is something that I never thought was even possible or the friendships that have been made through supportive eye without judgment. – Patricia

 

I am a mother who is not alone. This retreat has been a turning point in my life. I am coming to have a better grip and more control of me. I need to take care of me so that I can take care of my child. – Lanor

 

Although I never met Cody, I feel as if I felt her presence. I’m more than certain she had a part if bringing us all together. I’m honored and blessed to be apart of such an event. I want every CF mother to have the opportunity to experience what I did. I will be involved any way I can to make this happen. – Elaina

 

It is truly amazing how fast this healing can happen isn’t it? It happened because: As you walked through the tears that came to you. You accepted the CF mom journey on your own journey…..You saw that you need to care for yourself, create community and find meaning in your story. You did this, You opened, You let go, You reached out, You took it in, you appreciated, you knew you needed to do this. And now, there is no turning back, love you all. So impressive!!!! – Robin

Eat Wings and Support the Cody Dieruf Benefit Foundation

 

Hey Folks, please save the date Sept. 13th and copy and paste this coupon:

BW3 Dieruf Fundraiser event image and bring it with you to Buffalo Wild Wings.  This will be a fun time to network and be with friends.

Buffalo Wild Wings will donate 20% of all sales (with the coupon) to the Cody Dieruf Benefit Foundation! This money will be used toward our Mothers’ Retreat “We Walk Together” at the 320 Ranch on September 29th.  Please share and invite your friends as well!  We love your support!

You MUST have the printed ticket to qualify.  Print your ticket here!