CDBF welcomes Robin Modlin-Presenter for “We Walk Together”

Introducing beautiful Robin Modlin, MA

I am a mother of a Cystic Fibrosis child.  My daughter, Anna is 37 and had a double lung transplant 8 years ago. My life changed when she received this miracle. Having been actively involved with the Cystic Fibrosis Research Inc,(CFRI) community for so many years I wanted to give back by designing a CF mother’s retreat called Embrace. I am honored to also be included in The Cody Dieruf Benefit Foundation Mothers Retreat held in Montana, We Walk Together. It is my passion to see CF moms come together in community and learn to care for themselves.

I am also a mosaic artist and a SoulCollage® facilitator. I believe we can create beauty and art out of our most difficult times. With an inward eye and creative bent I enjoy sharing collage and other participatory projects with others for personal healing. 

Life has been very generous to me. I also have a beautiful daughter, Sara who is now a physician and a wonderful husband, Doug. I am so grateful and I know that CF has shaped me and my entire family by teaching us so many valuable lessons of love and compassion. 

Thank you, Robin for being a part of our We Walk Together Mothers Retreat.

May You Never Take One Single Breath For Granted.

May you never take one single breath for granted.

To be grateful for each breath, is something we should practice every day. Not everyone has the ability to fill their lungs with ease. I’ve grown up knowing that. It is because of Cystic Fibrosis, that I feel so vastly that my lungs should never be taken for granted. Every breath, every inhale and every exhale. The way my respiratory system is so intricately and beautifully made. My body, for being healthy and carrying me throughout my journey of life. I refuse to not practice gratitude. To be grateful, every second, for another breath, every day for another day to experience life. I am grateful.

We should not take moments for granted. We should not take our time here, on this earth, for granted. We should not take our bodies for granted. We should embrace every second. We should inhale the goodness and the grace we have of another day of life.

Today, I will bask in the goodness of another day. I will be grateful. I will not take a single breath for granted. I will take my body as high and low as it can go. These moments, this life and my body- are not forever. I will make every second as beautiful as I possibly can- however I choose to.

Today, I am grateful for each breath.

on

https://barefootbabysite.wordpress.com

18 year old Madison Ivey never got to grow up with her cousin Cody, who passed away from Cystic Fibrosis, but she holds her close to her heart. From a very young age, Madison would see a butterfly or hear a song and would know that it was Cody making herself known.  She says that, “I feel that Cody is always giving me a sign, leading me to believe that I am on the right path”. ” Madison says that “Cody is her angel on this earth, always dancing to her own beat of the drum”.

Team Cody

It takes a team and The Office of Gallatin County in Bozeman, MT. formed a softball team and played with hearts full of love in hopes to draw awareness of Cystic Fibrosis.  Being strong supporters of The Cody Dieruf Benefit Foundation, Gallatin County Softball Team would like to stike out Cystic Fibrosis.

Whether you make a donation, spread awareness, become an organ donor, or just simply believe in hope for a cure, CDBF hopes that the kindness of others, will inspire you to always try and help people in need and to truly make a difference in the life of those with this disease called cystic fibrosis.

Meet Mike and Kat Porco with Attain Health.

 

 

Attain Health was created in 2016 through the collaborative efforts of Mike and Kat Porco from Red Lodge, Montana.

Attain Health empowers patients with cystic fibrosis by partnering with them to develop the skills necessary

to optimize daily care and regain control over their health. Attain’s platform of Integrative  Health

and Physical Performance Coaching offers clients the opportunity to set personal health goals,

develop implementation plans, establish positive habits and overcome inevitable setbacks to

achieve their vision of health.

Attain Health has served over 125 members of the cystic fibrosis community.

Together, we can make a world a better place.

http://attainhealth.today

 

 

Fitness Scholarship available to individuals with Cystic Fibrosis

Hello, Montana. Due to a Vertex grant given to The Cody Dieruf Benefit Foundation, we are now offering scholarships for Fitness to those with Cystic Fibrosis in Montana. Please message me if you are interested in applying for a scholarship.

Fitness is a must with CF and we are so excited to be a part of helping someone stay healthy.

Thank you, Vertex Pharmaceutical.

Climb for Cody

 Climb for Cody

In celebration of my 50th birthday I plan to complete climbing the 50 highest peaks in New Hampshire.  Of these 50 climbs, 48 of them are part of the 4000 Footers, which I first started hiking with my friend Denise several years ago.  Since then, Bruno and I have been hiking the 4000 Footers together.  The other two mountains that make the 50 highest peaks in New Hampshire are, Sandwich Dome and The Bulge. These two are just short of 4,000 feet in elevation.  My goal is to hike the remaining 11 summits on the list of 50 highest peaks, ending a climb to Mount Moriah (#50) in October with Bruno, Denise and a few other friends.

When I hike in the mountains I feel very alive, present and connected to my surroundings.  The ability to climb mountains, to have the sensation of my heart pounding in my chest and my lungs working hard to fuel my body with oxygen is a blessing I don’t take for granted.  For those living with Cystic Fibrosis, like my brother Michael and my cousin Stacy, every breath is precious, and sometimes just getting through the day feels like climbing a mountain.

It was through my brother Michael that I came to know about the Cody Dieruf Benefit Foundation that was formed to honor Cody Nicole Dieruf.  Cody passed away April 28, 2005, from Cystic Fibrosis at the age of 23.   Her family formed the Foundation to carry on Cody’s legacy and to help others who live with Cystic Fibrosis.  The Foundation has helped patients by covering costs of medicines, co-pays, and therapy equipment.

In lieu of gifts or a grand celebration, I invite family and friends to make a donation to The Cody Dieruf Benefit Foundation.  I will match very dollar donated for Climbing for Cody, and Pfizer, who generously offer a matching gift program to employees, will also match each dollar.

Please consider a donation to The Cody Dieruf Benefit Foundation to help me celebrate reaching this milestone of being 50 years old!

Donate Today